In today’s healthcare environment, the role of a health care proxy has become increasingly important. Research shows that nearly 70% of adults will require some form of long-term care in their lifetime, often at a time when they may be unable to make medical decisions for themselves. Whether due to illness, injury, or the natural aging process, there are times when individuals lose the capacity to communicate their wishes regarding health care. This is where health care proxies step in.

As a health care proxy, you are entrusted with making critical medical decisions for your loved one, ensuring that their care preferences are respected when they can no longer voice them. This responsibility is not only vital but also emotionally challenging, as the choices made can significantly impact your loved one’s quality of life and overall well-being. Understanding the intricacies of this role is essential for making informed, compassionate decisions during difficult times.

In this newsletter, we will explore what it means to be a health care proxy, the responsibilities that come with it, and how to navigate this important role.

What Is a Health Care Proxy? 

A health care proxy is someone authorized to make medical decisions on behalf of another person. This role can be filled by a health care agent appointed through a power of attorney, a court-appointed guardian, or a legal surrogate. Legal surrogates are typically close family members or trusted friends who step in to make decisions if no agent or guardian has been designated.

Understanding the Role

As a health care proxy, your responsibilities include:

• Staying informed about your loved one’s medical information.
• Consulting with the health care team and asking questions.
• Approving or declining medical tests and treatments.
• Choosing care locations, such as hospitals or nursing facilities.
• Facilitating communication between your loved one and medical staff.
• Managing decisions related to finances and insurance.

If time allows, prepare by:

• Talking with your loved one about their values and medical preferences.
• Reviewing their medical history and care team details.
• Familiarizing yourself with legal documents, like a power of attorney or living will.

Communicating With the Person You Represent

Understand the patient’s wishes and values by discussing their medical preferences early and often. If they cannot communicate, consult close family members for additional insights, while keeping in mind that you are the final decision-maker.

Making Health Care Decisions as a Medical Proxy 

When you make medical decisions for an individual, consider taking the following steps.

• Understand the medical facts by consulting providers, reviewing records, and keeping notes.
• Assess options by discussing risks and benefits with the care team.
• Follow the patient’s wishes, even if they differ from your own.
• If their wishes are unclear, act in their best interests.

End-of-Life Decision-Making by Proxy

Health care proxies often make end-of-life decisions, such as whether to prolong life or allow natural passing. You may also decide on participation in medical research or experimental treatments.

Always prioritize the patient’s wishes, referring to advance directives like living wills or health care power of attorney documents. If research is proposed, assess the benefits and risks, and decline if it won’t benefit your loved one.

Self-Care for Health Care Proxies

Being a health care proxy can be emotionally taxing, especially as the patient’s condition worsens. It’s important to care for yourself to prevent burnout.

To manage stress, prioritize sleep, exercise, meditation, and mental health support.

Seek Additional Support

Consider consulting a professional to better understand your role. Resources like the American Bar Association’s guide or advice from a geriatric care manager and elder law attorney can provide valuable assistance.